SET began with an elder law attorney, Monica Franklin, and a family physician, David Compton, meeting over coffee to discuss the impact of young-onset Alzheimer’s disease on their personal and professional lives. SET was an outgrowth of those discussions and Monica’s positive experiences with a weekly online peer-to-peer support group sponsored by the Dementia Alliance International (DAI), https://www.dementiaallianceinternational.org. News of the SET group quickly spread via word-of-mouth and referrals from local physicians.
Our discussion groups are limited to individuals who have been formally diagnosed with mild cognitive impairment or early neurocognitive disorders due to diseases such as Alzheimer’s, cerebrovascular disease (vascular dementia), Lewy Body disease, posterior cortical atrophy, traumatic brain injury or brain lesions caused by multiple sclerosis, etc. We meet weekly to share our experiences, learn and support each other.
Studies show that support groups have a positive impact on the physical and cognitive health of individuals who participate. Early-Stage Memory Loss Support Groups: Outcomes from a Randomized Controlled Clinical Trial.
https://www.ncbi.nlm.nih.gov/pubmed/20693265. SET participants and their families have shared the impact of SET on their lives, and you may read about their experiences here.